Sunday, May 9, 2010

Lean Green Behavior Machine

Let me start this off by saying that I've known for a long, long time that Thomas is special. By special I mean he's some bizarre cocktail of quirky and brilliant and ruthless and compassionate and annoying and precious and beautiful and moody. And he's all these things to the Nth power, and he's all these things all the time.
For instance, see this image on the right? That's Mr. Krabbs and SpongeBob made from dominoes. While the rest of the 2-year-olds in his preschool napped, ours made this. Lest you think this was just a one-time thing, I have a basement full of proof to the contrary. Illustrations, books, scripts, paintings, posters, sculptures ... you name it, I can show you boxes full of it, and it all shows sophistication well above what his age should allow.
When he was 3 his preschool teachers gave Thomas some puzzles to work on to keep him busy. They were intended for ages 11 and older. He finished them in 10 minutes. He now builds 3-D puzzles in mere minutes as well. He also remembers every line and nuance in every movie he's ever seen, even if he's only seen it once. He draws in perspective and understands vanishing points. He is a pretty smart little fucker. Even his teacher agrees.
So when his teacher asked to have a guidance counselor present during our last parent-teacher meeting, we were a little puzzled. Something about the way she careened through the list of his positive attributes, and I could just tell that she was looking through her sites for a place to drop the bomb. Sure enough, after the requisite "good news" she told us that he had a hard time focusing. He was squirmy. He would burst out laughing for no reason. He would yell. He would look at how the legs connected to the desk while she taught her lessons. He would interrupt her. And while she admitted he wasn't a distraction to the other kids and that he tested very well on the lessons (even if he appeared not to be paying attention), she seemed to say the most by what she didn't say at all. As if she silently begged us to decipher some code that she'd been forced to use. Like in those movies where the hostage has to answer the phone at gunpoint and make like nothing's wrong. Like does anybody know the semaphores for ADHD? Well, sorry but I don't speak winking, gesticulating inference very well.
In our kids' school, there's a color-coded behavior monitoring system: Green days are days without incident. Blue days, you had one warning. Yellow days, you're on double secret probation. Red days, you miss recess and purple days you get sent to the Principle's office and she calls your parents. This is tracked visually on a colored bulletin board that hangs in the front of the classroom, the child's name affixed to a magnet that they themselves must stand up and slide from color to color. The color on which your name lands at the end of the day is recorded in your folder and sent home each night so that your parents can monitor behavior in near-real time. After this meeting we paid more careful attention to Thomas' colors. Was it normal that he was bringing home yellows and blues and reds nearly every day? Was there something wrong? Did we need to take action? One thing was for sure: if his teacher had any opinion, she wasn't talking.
So we raced home to look up ADHD. ADD. Autism. Asperger's. Gifted. Ed Zachary Disease (your kid's so ugly, his face looks Ed Zachary like my ass). Anything we could find. And while Thomas exhibits some symptoms of nearly everything we looked at (except for Ed Zachary and boy, did we breathe a sigh of relief on that one because you can get better from the other stuff), nothing seemed to fit exactly.
And this is the part of the story where I wish I could tell you that it ended up just being some grand misunderstanding. That his teacher had squirted a grapefruit into her eye that made her wink uncontrollably all day. That we all whispered "kittens" down the lane and it came back "barbed wire." Wish I could, but that's not what happened. We're in a very odd place right now, trying to seriously and objectively evaluate what we have in front of us. Is this some developmental hiccup? Something more serious? Do we test for any of the popular acronyms or is his teacher just a mean and bitter cow? Or is this just the universe taking yet another shot at my balls?
Which reminds me, I totally should have titled the last post "Ball's Well That Ends Well." Guess I dropped the ball on that one. What, you didn't think I was going to make it through an entire post without mentioning them, did you?
In all seriousness, if you happen to have any input or ideas or expertise or whatever, please reach out to me either via e-mail or comment on this post. One thing we have learned is that there is just as much misinformation as there is information on the internet.

•••

On another note, I took the boys to Ten Thousand Villages (Sandi's favorite store) to buy, among other Mother's Day gifts, a necklace. We were standing by the necklace display area when a young lady asked if we needed help. Thomas put out his hands and violently mock strangled some imaginary person in front of him. Then he stopped and with his fingers still together in mid-strangle pose, he raised his hands and said, "Yeah, we need a necklace about this big."
Kids, if that's "special needs" then I never want to be mainstreamed.

"I like to figure things out and solve problems." -- Temple Grandin


Tuesday, May 4, 2010

Games Without Frontiers

Remember the guy with the quids? His name was Rob. My nickname for him was Broccoli Rob which I thought was kinda clever (on account of he was like a vegetable, get it?). Broccoli Rob was the kind of guy who would call you up to ask if you wanted to play golf, then not only not show up for the round, but disappear out of your life for 9 months, not answering any phone calls or e-mails or anything. Then one day he'd call you up and pick up the conversation seamlessly from where he left off as if no time at all had passed -- all while you're stuck on the other end waiting for him to take a breath so you can find out what the fuck happened to him. The worst thing is that the stories of his disappearances weren't really stories at all. He just got drunk and forgot about our plans, then felt like he had to avoid me until I forgot to be mad.
I fucking hated Broccoli Rob for that. I would never do that to you. I will tell you now that I love being here and if I'm ever gone for a stretch, I promise to come back with a good reason. Even if I have to make something up.
To whit, following are updates on a some of the things that have kept me away.

1. My Health.
I will offer here that my testicles have been seen and touched by more people during the past month than during the entire decade that was my 20s. In some cases the doctor attending to me would disappear from the room only to emerge moments later with 4 or 5 "colleagues" -- people who I imagine are not actually doctors, but maybe curious neighbors or drinking buddies to whom the doctor had lost a bet -- all anxious to glove up and have at 'em. Makes a boy feel special.
With all that attention came a slew of uneasy conversations, peppered with words like hydrocele. debridement. cyst. hernia. surgery. tumor. removal. pre-cancerous. biopsy. The list goes on. And after all that pain and all that prodding and all that inspection and all that worrying, it turns out there's absofuckinglutely nothing wrong with me. Chronic ball pain -- while cause for my primary physician to freak out and, in turn, scare the piss out of me -- seems to be pretty common at my age. Who knew?
Probably worth pointing out that my primary care physician is a woman and is thus excused for gaps in her testicular knowledge by virtue of the fact that she does not possess the equipment and cannot be expected to fully understand the mystery that is men. This being said, I must say that I stand by my choice of her as my health advocate as I am now old enough for annual digital rectal exams and she has the tiniest fingers I've ever seen.
So I do have a hernia, but it's a belly button hernia and the surgeon essentially said it's a few clicks more complicated than clipping a toenail. Further, he said that if I felt at all apprehensive about the procedure he'd be happy to give me a box of Kleenex and a copy of Beaches on DVD because obviously I'm a woman.
I also had a growth on my right thigh biopsied and some pre-cancerous cells on my cheek frozen off. No big whoop. Part and parcel of being Irish.
To summarize: Healthy as a horse, albeit a horse with slightly achy balls.

2. My Job.
One day as I was sitting at my cubicle I heard a loud explosion and the sounds of screams. I looked out the window and saw that the Barclay's building across the street was under attack by what appeared to be an alien spaceship. Long story short, a small band of us hid out in the basement where, after a long period of trial and error, we learned that these aliens died when water hit them. Crisis averted, world saved. But it took a lot of time.

3. Ethan.
You remember Ethan, right? The kid this blog is supposed to be about? Well, Ethan's 1-month post-op check-up was rescheduled several times -- conferences, alien invasions, guest ball touchers ... you know, that kind of unavoidable stuff. That visit finally happened yesterday morning. Wanna know how it went? Well, I can sum it up in one word: Normal. Ethan has normal hearing. Specifically, in measuring 4 ranges of frequencies, the 2 middle ranges show him at 25 dB which falls within the normal range. For ultra-low and ultra-high range he has mild hearing loss, but he still scored 100% on test word recognition. And since in math we are taught to round 1/2 up to 1, we're calling it normal and considering it an amazing win, made even better by the likelihood that Eth's hearing will actually get even better with time.
Dr. Brad was, again, damn near giddy when he looked into Ethan's ear and saw how well everything had healed. He let me look through a set of magnifying lenses and showed me how the prosthetic bone is visible through the ear drum he created. I personally was struck by how many tiny arteries were already in place, bringing blood to the area. Admittedly I don't know shit about shit, but I know when something looks healthy and Ethan's ear looks to atresia repair surgery like Usain Bolt looks like to track and field.
Most important, at least to Ethan, is that he's now officially clear to run and jump and swim and be a little kid. And to that end I gotta tell you that I am so proud of that little guy. He has taken such amazing care of his ear during his recovery period, being very careful to avoid percussive activities and water. In fact, since the previous trips to Virginia were all business and left little time for leisure, we decided to make this trip special. We drove to Williamsburg and did Busch Gardens the day before with my brother and his wife (who are amazingly gracious hosts). During a river raft-style ride, a considerable amount of water got dumped on Ethan's head and he nearly freaked out, worrying that he was going to be in trouble for getting his ear wet. It was the kind of thing that makes you want to pick him up and hug him, which I did. And I sat him down, looked him in the eye and assured him that he is no longer at risk and has nothing to worry about. That he is healed. That we are celebrating the successful end of a very trying time in our lives.
Other special things: Ethan turned 6 this month. He also lost his first top tooth at dinner in Williamsburg on Saturday. The Tooth Fairy found us and left $10 under Ethan's hotel pillow, which he promptly spent on a light-up sword in the Oktoberfest Pavilion the next day.

4. The Pussy Game
The boys made up a game that they now play all the time. The gist is that one of them pretends to be a mean old lady and the other pretends to be the mean old lady's cat. The old lady walks around saying, "Puss-ay, puss-ay," and when the cat comes by, the old lady beats the living shit out of it. Now, when Ethan plays the old lady, he sounds just like Lovey Howell from the Gilligan's Island. Try to imagine that for a second -- A 6-year-old boy wandering around like a proper, gentile old lady saying, "Puss-ay, puss-ay." Now if you can sit there while this game is being played and not damn near blow an o-ring trying not to laugh, you're a better person than I. So the other night Sandi and I were hanging out while the boys played the Pussy Game and we decided we'd had enough. "Guys, knock it off, OK? You're getting too violent." Ethan: "It's OK, daddy. We're not being rough. We're playing 'Old Lady' pussy." Pop goes the aneurism, don't the aneurism go pop.

"You can't help that. We're all mad here." -- The Cheshire Cat

Thursday, April 8, 2010

Randomly, He Said

I just got back from having an ultrasound of the boys. Not Thomas and Ethan, my testicles. Haven't named them. Maybe I should. Tito and Germaine? Iggy and Pop? Sly Dunbar and Robbie Shakespeare? Something musical. What was I talking about? Oh yeah. My nuts. Ruling out a hernia. Been increasing the intensity of my workout lately (thanks for the suggestion, Neil, you DICK!). Feeling it in the strangest of ways.
So I'm there in this very sterile, clinical setting and a very sterile, clinical lady asks me to strip bare ass and put on a robe, open side forward. I do. She leads me into a room with an ultrasound machine and tells me to lie down, place this rolled up towel between my legs and rest my nuts on it. Then I'm to align my penis with true north (to illustrate, she moves her hands up from her crotchular area to just about mid-chest which makes me feel instantly emasculated by her husband or whatever Mandingo warrior standard she apparently holds men to) and drape this open towel over it. I feel like asking for a smaller towel. Whatever, ba da boom, done.
Not that I have porn-star body confidence or anything, but -- her inevitable disappointment in my penis notwithstanding -- my general frame of mind was like, "Yeah, whatever." I've had a vasectomy and frankly, if you're not charging at my sack with a scalpel and an R. Lee Ermey-style war face, then you're nowhere near the baddest hombre my undercarriage has ever encountered, m'kay?
In fact, the only thing even remotely surreal about the entire scene is the music that's playing: a radio tuned to some inane secretary-rock station. As Nurse Betty is greasing and poking, I'm marveling at the aproposity of the great cosmic jukebox's selections. Following is -- without exaggeration or edit -- the playlist.
First up, "I hope you know it's personal ...". Kinda sad that Betty wasn't in the room while this one was playing as I would have loved the chance to sing this to her.
Next, Brick House. "... mighty, mightay, just lettin' it all hang out ...".
Next, The Theme From Shaft. Thinking about peeking at Betty to see if she's wistfully imagining the Old Spice guy, mouthing the line "I'm on a horse."
Next, Tom Petty's Free Falling which to me sounds like Free Balling so I sing those words out loud which turns out to be a big mistake because Nurse Betty starts to laugh and pushes the ultrasound wand ever so firmly into my aching nads.
Lastly, U2's Still Haven't Found What I'm Looking For.
Yeah, that's what she said.

•••

Ethan was originally scheduled for his final follow-up exam tomorrow, but Ronnie Bean called to reschedule. We're now set for April 23. Turning it into a long weekend with lots of swimming (assuming we get the green light) and maybe a side trip to Colonial Williamsburg. Because really, what 6-year-old boy doesn't just lie awake at night just dreaming of how cool it would be to live without air conditioning or Wii. We obviously would be very grateful if you'd care to share your recommendations for kid-friendly activities in that area.

•••

Speaking of songs, I heard Cat Stevens' Wild World on the ride home (scanning the dial, trying to scrub the scrotum-centric playlist from my mind). I once had a very animated discussion with a friend who protests Cat Stevens because he changed his name to Yusuf Islam and that's a terrorist name. And I'm all like, "Dude, his name was CAT. In my book that's all the fucking reason you need to change your name."
Same guy once remarked about a girl we both knew that she had nice quids. Dumbass that I am, I couldn't let it go and asked, "Quids? What the fuck are quids?"
Him: "It's Latin for tits."
Me: "No it's not."
Him: "Sure, quid pro quo is Latin for tit for tat, right? Maybe it's 'quo' that's Latin for tits. But quids sounds better. I'm pretty sure I'm right."
Do you SEE what I've had to deal with in my lifetime? To some degree, all of life just seems to be about ball pain.

"Who's the black private dick that's a sex machine to all the chicks?" -- Isaac Hayes